I absolutely 100% no arguments on this, have to outlive her. This is categorically non negotiable, and not just outlive; healthy fulfilled life outlive her.
If no one did this (or any fund raising), my Pinkie wouldn't stand a chance - which obviously cannot happen to my Pinkie or anyone else's.
Pinkie has to do so many things she doesn't want to, from daily physio, creon (only she knows why this bothers her so much), nebulisers and of course the much feared blood tests or pokies as they are known in our house. If this tiny wee scrap of a child can pull bravery out the bag at whim, I think I should man-up too.
So while I don't cherish the idea of doing a marathon, I'll think about her little face every step of the way and I might just go and win it (insert laughter of a terrorised lunatic here). On the plus side, I am going to get some new trainers in a fancy running shop where you can also get hot innersoles moulded to your feet - I've always fancied a pair, but figured they were a bit too pricey just to mooch about in.
I'm going to start my fundraising efforts soon, and see how much I can raise from now to post marathon, even if I don't get in.
When Pinkie was born and diagnosed I thought 30 years sounded such a long time and at least we had time on our side, now when I think about it and the speed in which her first 10 years has passed, I get such worry bubbles in my stomach that I can't swallow. In my heart I know she'll live to be in her 80's and she'll reminisce with her grandchildren about when CF was a problem, they'll listen, but it will be so far removed from their lifetime that she might as well be talking about smallpox.
In the meantime, to make this a reality, we need to pull together and find a cure, and basically that boils down to funding the research for the clever folks.
So here goes nothing, I'm going for a run - wish me luck.